Debra Ireland (the Dystrophic Epidermolysis Bullosa Research Association) was set up by families of children with EB in 1988. We are funded by donations, fundraising and grant support. Epidermolysis Bullosa -EB- is a distressing and painful genetic skin disorder causng skin layers and body linings to separate and blister at the slightest touch. Children born with EB have skin that is as fragile as the wings of a butterfly - and as easily damaged.
Some children despite adequate teaching, a stimulating environment and with a generally normal intellect, have difficulty with movement and specific aspects of learning. Dyspraxia is a difficulty with thinking out, planning and carrying out sensory / motor tasks.
Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures.
We are happy to present the following resources to sufferers, parents, carers, professionals who wish to work with eating disorders and anyone wishing to gain a better understanding of eating disorders.
GROW is a Mental Health Organisation which helps people who have suffered, or are suffering, from mental health problems. Members are helped to recover from all forms of mental breakdown, or indeed, to prevent such happening.